Today I’m thinking about Emily Rapp Black’s experience after her two-year-old infant son Ronan died, as well as about people I’ve loved who died in April — my wife Evelyn, John’s wife Anne, and Judy’s husband John. I hold them in my heart, along with those of you who also lost loved ones this month. Each year, this month of death makes us moody, sometimes snarly, especially when we think about what could have, should have, been.
Who I am.
I write about the landscape of grief, nature, and the wisdom of fools. The author of four books, my essays, poems, and reviews have been published in over 50 journals, including in the Huffington Post and Colorado Review. I’ve won the River Teeth Nonfiction Book Award, the Chautauqua and Literal Latte’s essay prizes, and my work has been nominated for four Pushcart Prizes and named a notable by Best American Essays. My account of hiking in Yosemite to deal with my wife’s death, Mountains of Light, was published by the University of Nebraska Press. http://www.markliebenow.com.
Showing posts with label Tay-Sachs. Show all posts
Showing posts with label Tay-Sachs. Show all posts
Wednesday, April 11, 2018
Tuesday, March 19, 2013
The Reality of Finality
When grief comes, the world
changes forever.
Commonalities of Grief
All grief is the same, and
each grief is different.
If you haven’t experienced
the death of someone close, you don’t know how devastating and pervasive grief
is. It affects everything. It changes everything.
* If you would like to read the rest of this post, let me know and I’ll send it to you. *
Saturday, February 23, 2013
Death of a Child
Book: Still
Point of the Turning World, Emily Rapp
Emily Rapp’s son Ronan died before his third birthday. I knew of Emily through one of her friends, so I won’t pretend to say that I understand what she feels or thinks about the loss of her child. I lost my wife early. There are similarities, but there are also significant differences.
The cause of Ronan’s death was Tay-Sachs, a genetic defect that kills every baby born with it within the first four years of life. Over the months, the infants increasingly lose their ability to see, hear, feel, touch, move, and breathe. There is no treatment and no cure. Soon after Ronan was born, he began to die.
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