Book: Light Of One Star, Anne Fischer Juhlmann
Anne Juhlmann has
published the journal she kept of her daily life taking care of her two
sons, Zach and Sam, who developed Mitochondrial Disease when they were young
and died within a few years of each other. It’s a story of strength, heartbreak and love, and it
will make you laugh, cry and hurt.
Anne’s book joins other
moving accounts of parents writing about the death of their children, particularly Emily Rapp’s (Black) account of her son Ronan’s death
to Tay-Sachs at age two (Still Point of
the Turning World), and Elea Acheson’s blog posts and writings in the Huffington Post about her son Vasu dying
of kidney cancer at age six.
